Welcome...

Welcome to my blog!  A place for me to share my experiences as a mother to a child with special needs.  It's taken me a long time to get to a place in my life where I am comfortable sharing my son's story and my own personal struggles along the way.  I hope that by writing here will be both therapeutic for me and helpful for those who want to know more about what this means to me.

My son is coming up on his 3rd Birthday on January 20th.  His name is Carter.  He lives with a metabolic disorder called Complex I Mitochondrial Disease among a few other conditions that cause him to struggle with even the smallest of "normal things".  This disease effects the powerhouse of cells that are needed for energy production and livelihood of vital organs.  My son's brain, muscles and gastrointestinal track were affected the most by the disease.  He is unable to walk, crawl, talk, eat or understand simple commands.  He must take several medications and supplements every day to help him regulate abnormal levels and seizure activity.  He had a feeding tube put in on June 8th of this year.  We got his official diagnosis in May. 

Our life for the last 3 years has consisted of numerous surgeries, countless tests, many long distance trips to specialists, let downs, struggles, triumphs and learning experiences.  This was not a life that I ever imagined for myself nor my child, but it's a life that I am learning to embrace and accept.  So follow me as I continue to walk this path that is unfamiliar and untouchable to most, yet weathered by many before me and many after...